Monday, 22 September 2008

Back to Work!

Hi folks,

I had surgery on Friday (19th Sept) to put in the tissue expander. It was just day case which was nice (shame they don't do it in the Day Surgery yet though, then my friends could have looked after me!). I went in at 07:30am and had to wait until 12:30pm for my op!!!!! Mr Desai came round and drew all over me and I looked like a dressmaker's doll with dotted lines everywhere. He measures across my chest, to align the boobs I guess.

As usual I didn't mind the anaesthetic bit, they gave me some Midazolam which is a lovely drug that just makes you a bit floaty before they gave me the actual 'put you to sleep' one when I totally conked out in a matter of seconds!

I went in to Surgical Admissions (the old ENT ward) and afterwards was transferred to Surgical 7. I remember waking up in recovery and Sheree from work was there which was nice - a friendly face! I struggled to keep my eyes open though.
And indeed for the rest of the day I struggled with talking/eyes open stuff! I just wanted to sleep. Ashley's Dad's wife Lynn came in to see me as she works in the hospital and then later Ash came in too and stayed with me, The nurse looking after me was a bit dippy and wasn't sure whether I was supposed to be going home or not. Well I WAS! There was no way I was staying overnight, what a waste of a bed for one thing - I was fine to go home. Mum came and picked us up although I had to get Ashley to push me in a chair to the car as I still felt a bit wobbly.

Got home - straight to bed and up late on Saturday. Felt a bit light headed still on Saturday but it wore off eventually. Actually felt a bit like a hangover - well it was - an anaesthetic hangover.

Saturday Ashley also told me some bad news - he had had a phone call from work on the Friday informing me that I have been overpaid and that I would not being getting my wages on Wednesday but would just be on Statutory Sick Pay. That means I will be getting about £250 a month. Not nearly enough to live on - not enough to even pay my HALF of the rent, let alone all the other bills. So that was a bit of a blow and a pain as there was nothing we could do about it over the weekend apart from worry.
In reality what it means it that instead of having 4-6 weeks recovery from this operation, I am going to have to go back to work this week. That's a bit pants but if that's how it's got to be then that's how it's got to be. I would have gone back the last few weeks but the unit had moved because of building works and I had no where to actually go.
Anyway, I don't mind too much but now I am going to have to work hard because every penny counts. At least I am not feeling quite so tired as before, the chemo has really worn off now.

So much so in fact that Ash and I did a six mile hike last week! We walked from Orpington all the way up to Biggin Hill to have dinner at his Dad's. It was a really good walk and I didn't stop or slow down too much so I am definitely getting better!

We also have new - we have a new cat at the moment. He is called Winnie and is OLD, anywhere from about 17-20. He needs rehoming as his present owner is moving back to New Zealand. We are trialling him out with Dora as we are not sure how they will get on. They have been hissing and growling a bit at each other but no fur flying as yet. He is pretty chilled out actually, it's just about whether she will accept him.

That's all for now, I'm going to get dressed now and then my friend Gemma is coming over for the day.

Lots of love
Liz
xxx

Monday, 8 September 2008

Ballooning Pictures (in backwards order!)






























A Normal Life

Hello,

A little update to let you all know that I am doing well - the hair is growing back in full force now and I had my first hair cut last week from Emma as I was starting to look a bit messy around the ears!

Good news! Emma (Ashley's sister) gave birth to her first child on Sunday so we had a cuddle. It was a boy, 9.6lb, no name yet! He is lovely, as we didn't know what he was before the birth we haven't been able to buy anything but now we can go and buy funky clothes and toys for him etc. Congratulations Emma and Steve!!!!!

I am still working away at the eBAying. It is getting more exciting as we have more visibility online now so more people are seeing and buying (and spending more) on our stuff! It keeps me out of trouble which is the main thing and I am getting out of the house most days instead of mooching about in my dressing gown.

I do miss being at work in the hospital and can't wait to get back to my friends and colleagues although I am not looking forward to the exhaustion of work again. I will get a phased return i.e. I will be broken back in slowly. But that is only for 6 weeks and then it's back to normal. Apparently it takes about a year to return to full fitness after an illness like cancer. I can't NOT go back to work so I think it is one of those situations where I will have to be really aware of how I feel and make sure I don't overdo it. I have a tendency to push myself and have a real problem saying 'no' to people so I will have to REALLY watch myself.

First week of Slimming World went well - I lost 3lb which is OK. I have relaxed into it a bit this week and am actually quite enjoying the challenge of doing more cooking and trying to make our favourite dinners more healthy! Ashley is doing it too now, officially. He joined up last week but luckily there was ONE other man there so they could give each other moral support! He doesn't have very much weight to lose. Also as he is now cycling to work on his new shiny bike he is doing the exercise program. He is so going to get more certificates and stickers and things than me!!!!!!!!! The challenge is on!
One little note about the new bike - it's MASSIVE! I tried to get on it and had to go up about 3 stairs before I could even attempt to get my leg over - and then my feet didn't touch the pedals properly!

Check out the hair!



Lots of love

Liz
xxx

Wednesday, 13 August 2008

The In-Between Time

Hello,

It's been a while this time hasn't it!?

Well, I've been recovering from the last bout of chemo and just trying to get my life back on track a bit now. I am still feeling very tired at times but my energy is returning gradually and two weeks after the last chemo pill I am already feeling better.

I haven't really been doing much, working for a friend putting LOTS of things on eBay (more tiring than it sounds and dangerous when I browse.....!).

I joined Slimming World on Thursday (I have done it before) in order to lose some weight. Well, it was a shock when I got on the scales I can tell you! It is so wrong to weigh more than your boyfriend!
Anyway, Ash said he'll do it with me as we both need to change our eating habits although he's not too happy that Crunchy Nut Cornflakes aren't a free food.

I have been catching up with people a bit more and it was brilliant to FINALLY catch up with Sarah who I haven't seen since she got back from Oz (6ish weeks ago!).

The allotment has calmed down a bit now. Our big harvesting time was around that last chemo which was a pain but we got HUNDREDS of runner beans (some of you will know, as you've been/bean eating them!)
We have also had quite a good crop of tomatoes. A shame since my mum gave us the plants but she lost all her crop due to blight. We had some potatoes and lots of courgettes too, some spring onions and a few red onions.
We lost our broccoli in the space of about 2 days to pigeons - next time we'll put them under a net. Our carrots and parsnips didn't so well at all although the marigolds that I planted around the carrots as a sacrificial plant have done brilliantly!
We've dug up that bed now and are preparing to clear it all for the winter unless we decide to put in a late crop.
What we'll probably do is just leave it and start again next year with a few different crops and some that we know will do well - runners definitely!

We went blackberrying the other day - something I haven't done in donkey's years - and got a bit scratched but picked some lovely berries to make a pie (non-Slimming World - oh well!)

The other thing I suppose I should mention is that Ashley and I have just passed our 1 year anniversary! It's seems to have gone very quickly but also it seems like we've been together forever. We're seriously considering the possibility of moving to Cornwall next year to live as we can afford to buy a house down there and we love it - it's a much more outdoor lifestyle.

So that's my update, I'll be going in for surgery on the 19th September and there'll be news of a new arrival when I write again. Uncle Ashley is getting excited because he'll have a baby to squodge!

Please take a minute to have a look at the info below about prescription charges. As you all know we have been through a financially difficult year and this doesn't help.....

Lots of love to you all and thank you for your continued support

Lizxxxxxxxx

Help us to show the Government it is wrong for people with cancer to pay prescriptions charges for life saving treatment.

Almost half of cancer patients in England are being forced to cut back on basic needs such as food or fuel, in order to pay for their prescriptions.

Macmillan believes prescription charges are a tax on illness and should be abolished in England.

Here’s how you can help right now if you live in England; Click on the following link http://e-activist.com/ea-campaign/clientcampaign.do?ea.client.id=70&ea.campaign.id=674 to take action today by writing to your MP and local paper, we’ve made it as easy as possible with a template letter ready to be emailed.

You can also help us by filling in our online survey on prescription charges here: http://www.surveymonkey.com/s.aspx?sm=Pi8WQlMFtLtNzKpZKx3oEA_3d_3d

Please forward this onto your friends so that they can join the campaign too.

If you would like to join Macmillan’s network of campaigners and get updates on our campaigns visit http://www.macmillan.org.uk/campaigns and submit your email address.

Your support is invaluable to us and people affected by cancer.

Many thanks

Ronan Haughton
Macmillan Campaigns Officer

Friday, 8 August 2008

LAST CHEMO!!!!!

Well guys, just a quick one to say that it is Friday morning and I am having my last ever dose of IV chemo today! I still have to take the pills for another week but at least no more getting having to sit there while they find a vein and stab me in the hand loads of times.
Nicky should be here in about 40 minutes to pick me up and Ash has a half day today so that we can celebrate but just being at home together! Incidentally, for all those wondering how long we have been together now - our 1 year anniversary is coming up in a couple of weeks - 1 year - already!!!!!
Hope you are all well,

I'll try and write again soon - typing has become something of a challenge these days, my reactions are not as quick!

Lots of love


Liz
xxx

Wednesday, 6 August 2008

Work, holidays and fatigue

Hello everyone,

It's been ages since I wrote, I know. Mostly it's because nothing much has been happening. I was at work for a bit, had the 7th cycle of chemo and tried to go back to work but was completely fatigued and far too tired to do anything.
I spent a week at Mum & Dad's which was lovely although the temperamental Cornish weather could have been a bit better.
I came home via Sam's party in Bristol which was great, it was brilliant to catch up with some Crisis people and big thanks to Kath for the journey home, I had been dreading traveling on my own.

Ashley and I went ballooning on the 26th July at Leeds Castle. This was the trip paid for by the charity the Willow Foundation who have been FANTASTIC. They also paid for us to go out for dinner that night to Tamasha (probably our favourite restaurant in Bromley). The best bit about THAT was the maitre d' coming up to me as we were having a digestive drink in the bar and saying those lovely words 'Madam, the bill is taken care of'. Brilliant - specially as it cost about £100 for the two of us. I urge any of you that can to go and have the Tamasha coffee - it is worth it just for that! (I wil probably explain this is full one day but I am too tired to do it now)

Then we went to Brussels for a few days including a day trip to Amsterdam. We were blessed with beautiful sunshine every day although it was tiring walking around and expensive - the Euro is NOT at a good rate at the moment!

The very LAST cycle of chemo started on Friday and already I feel pretty rough, I am trying to just stay at home and not do anything. I already have a sore mouth and my guts don't like me much but overall I am OK. Just got to get through this one and things will start to get better.

I admit that I am starting to see the light at the end of the tunnel now and that is something. There's still the radiotherapy to get through of course but I'm hoping that won't be quite so bad. The fatigue is unlike anything I have ever experienced before. I literally cannot hold a conversation together, I go all vague and forget words and things (yes, OK, some may say I have always been like that :) but imagine me normally but 10 times worse!)

Anyway, thought I'd just check in with you all. I know it's been ages since I wrote when I get emails asking me if I'm OK! I am OK, I'll try and keep you posted a bit more regularly when I'm not quite so knackered.

Love to everyone,


Liz
xxxx
(Pics up soon from ballooning and hols but I'm back to my film camera for now so I have to get the film developed etc - who remembers doing THAT????)

Wednesday, 11 June 2008

Life Is Good

Hello everyone,

Sorry it's been a while. I've just had another load of chemo which I thought wouldn't be too bad but after two weeks of feeling brilliant (for the first time in ages) it's been a bit more difficult than I thought. At least with the other chemo it was so quick that you never really had time to get better. With this one I was dreading it because I felt good but I knew I was going to be feeling rotten for a couple of weeks. I haven't been THAT bad but in the mornings I feel a bit sick and I have been really tired. I usually perk up a bit in the afternoons but it means that the housework is not getting done which I hate... I can't even be bothered to do the washing up some days which I feel bad about because Ashley is working so hard at the moment and it's not fair for him to have to do everything.

Today is Friday and I just took my last lot of pills for this round of chemo so... no more pills for two weeks!!!!! I'll go back to work next week too which will be good (financially and for my peace of mind).

I have done some interesting things recently - chemo is not going to get in the way of me living my life! Ash and I went to the Biggin Hill Air Fair which was excellent - I really enjoyed the jet planes and the army helicopters and stuff. It was very noisy though! It was a beautiful day and I got quite tanned. The only thing was that because the traffic was so bad we had to walk all the way from Bromley Common up to Biggin Hill (about 2.5 miles uphill). It wasn't too bad, we took it slow but I was wearing pumps and by the end my feet were killing me (girls you know what I mean!). In the end though we overtook the two buses that we would have been on and got there a lot quicker than if we had got public transport or gone by car!

I also did my charity "run" in London for Crisis/the Willow Foundation. We had a little team, "Team Betty", and we did pretty well, we walked briskly and it took us about an hour, allowing for a bottleneck under London Bridge.



The Team

Ashley getting up close and personal to a sheep!

Me and my sister Helen (us, posing? Never!)

Me and Ashley

Scooby and Ken (who started the race - I think they probably booked him when he was still Mayor!)

I've managed to catch up with a few more friends (brilliant seeing Nicky and Charlotte yesterday - I can't believe it's been over a year!)

I also managed to fit in a very pleasant day out in Cambridge with Lindsay and Hazeley (or Lindsay and the Two Baldies - sorry Haze, at least mine will grow back!). We had lunch outside in the sunshine, wandered around the town which is beautiful and then went to the cinema to see Sex And The City (I loved it - the clothes, the shoes!!!!!)

Oh! I nearly forgot to mention there is a new addition to our household. Ophelia has moved up to London now to be closer to work so a new housemate has moved in - welcome to Mr Piggy-Whoop! He is a (I think) two-year old Guinea Pig that belonged to Ashley's sister Emma. As she is having a baby soon Mr Piggy had to go :( so he has come to live with us and so she can still see him.

Dora thinks he is hilarious and tries to pounce on him but she is not a very good hunter (can't even catch a fly) and he has lots of experience of cats so he is not fussed at all. In fact, I think they might be friends.


What's wrong with this picture???????

*UPDATE*
It's Monday and I'm back at work. It was a bit daunting thinking that I had to catch up to where I was before but I had a productive day and loved catching up with everyone.

I saw Mr D last week and have a date for surgery - 19 September. This will be to put in the tissue expander which will then be filled with saline to stretch my skin out ready to have a permanent implant put in. I'll be in for one day and it's not a long recovery period so the radiotherapy will start as soon as possible afterwards.

It really feels as though things are happening again and the end of chemo is sort of on the horizon now.

Hope you are all well,

More news when I have it

Lots of love

Liz
xxx